Design and Psychometrics of a Supportive and Palliative Care Needs Assessment Tool for Cancer Patients
Abstract
Background: Supportive and palliative care is recognized as an important and vital component of cancer patient care. Utilizing an appropriate instrument can identify these needs. This study aimed to "design and psychometrically evaluate an instrument for assessing the supportive and palliative care needs of cancer patients."
Methods: This study is a methodological research with both qualitative and quantitative components. Participants included 210 cancer patients. Questionnaire items were extracted through qualitative study methods and literature review, and subsequently, an initial questionnaire was designed. The validity of this questionnaire was evaluated through content, construct, and face validity assessments. Internal consistency and stability of the questionnaire were also examined to determine its reliability.
Results: 59 items were extracted from the qualitative section and literature review. Subsequently, the Item Impact Score (values above 1.5) was calculated. The CVI (above 0.79) and CVR (above 0.56) were assessed, resulting in the selection of 35 items. Exploratory factor analysis yielded four factors: symptom and pain control (6 items), psychological and social needs (17 items), spiritual needs (4 items), and education and awareness (8 items). Finally, a 35-item questionnaire was designed, demonstrating acceptable reliability (α=0.90).
Conclusion: The questionnaire designed in this study has acceptable and confirmed psychometric properties (validity and reliability). Therefore, the use of this instrument is recommended for Iranian patients with cancer.
[2] Siegel RL, Miller KD, Wagle NS, Jemal A. Cancer statistics, 2023. CA Cancer J Clin. 2023; 73(1):17-48.
[3] Darbandi M, Khorrami Z, Karamoozian A, Aboubakri O, Miryan M, Rezakhani L, et al. A comparison of the burden of cancers between 1990 and 2019 in Iran: A national and subnational study. PLOS ONE. 2025;20(2): e0309699.
[4] Iragorri N, de Oliveira C, Fitzgerald N, Essue B. The Out-of-Pocket Cost Burden of Cancer Care—A Systematic Literature Review. Current Oncology. 2021;28(2):1216-1248.
[5] Emery J, Butow P, Lai-Kwon J, Nekhlyudov L, Rynderman M, Jefford M. Management of common clinical problems experienced by survivors of cancer. Lancet. 2022; 399(10334):1537-1550.
[6] Petrillo LA, Jones KF, El-Jawahri A, Sanders J, Greer JA, Temel JS. Why and How to Integrate Early Palliative Care into Cutting-Edge Personalized Cancer Care. Am Soc Clin Oncol Educ Book. 2024;44(3): e100038.
[7] Teike Lüthi F, MacDonald I, Rosselet Amoussou J, Bernard M, Borasio GD, Ramelet AS. Instruments for the identification of patients in need of palliative care in the hospital setting: a systematic review of measurement properties. JBI Evid Synth. 2022;20(3):761-787.
[8] Shamsi A, Dehghan Nayeri N. Design and Psychometrics of Quality-of-Life Assessment Tools for Patients with Hypertension. Payavard. 2022;15(5):479-489.
[9] Shamsi A. Design and psychometric properties quality of life questionnaire to hypertensive patient [Thesis in Persian]. Tehran: Tehran University of Medical Sciences; 2016.
[10] Koohkan Aliabadi E, Rajab Gh, Yousofian S, Zare-Farashbandi F. Development and validation of the health information needs questionnaire for families of children with cancer. Modern Medical Information Journal. 2019;5(1):50-59.
[11] Riahi A, Hariri N, Nooshinfard F. Immigrants and information needs: Health information needs of immigrants admitted to health care centers of medical sciences universities in Iran. J health. 2016;7(4):435-45.
[12] Shokouhi M, Abdollah Zadeh H, Mahmoudi H. Evaluation of Psychometric Features of Persian Version of Spiritual Needs Questionnaire in Cancer Patients. Religion and Health. 2020;8(2):9-18
[13] Badiyepeyma Z, Makaremnia S, Rahmanian kushkaki A. The effect of Web-based Benson relaxation training program on pain intensity and sleep quality of cancer patients (clinical trial study protocol). Education and Ethics in Nursing. 2024;13(4):1-8.
[14] Vahhabi Mashak M, Mojtabaie M. The Effectiveness of Acceptance and Commitment Therapy on the Depression, Anxiety and Quality Life of Women with Breast Cancer. Medical Journal of Mashhad university of Medical Sciences. 2022; 65(4):1858-1869.
[15] Nejat N, Jadidi A, Hezave AK, Pour SMA. Prevention and Treatment of COVID-19 Using Traditional and Folk Medicine: A Content Analysis Study. Ethiop J Health Sci. 2021;31(6):1089-98.
[16] Siegel RL, Miller KD, Wagle NS, Jemal A. Cancer statistics, 2023. CA Cancer J Clin. 2023;73(1):17-48.
[17] Nohtani V, Peyman N. The Role of Social Support on Quality of Life in Breast Cancer Patients: A Systematic Review. Journal of Isfahan Medical School. 2024;42(761):227-247.
[18] Memaryan N, Ghaempanah Z, Aghababaei N, Koenig HG. Integration of Spiritual Care in Hospital Care System in Iran. J Relig Health. 2020;59(1):82-95.
[19] Tavakol N, Tavakol M, Naeimi Marandi F. Finding meaning in going through cancer: exploring the spiritual experiences of women with breast cancer; a qualitative content analysis study. Pars Journal of Medical Sciences. 2024;22(1):12-22.
[20] Nematpour darzi A A, basharpoor S, Moslemi D. The Effectiveness of Mindfulness-Based Cancer Recovery Training on Pain Catastrophizing and Perceived Stress of Cancer Patients. Health Psychology. 2024;13(51):67-82.
[21] Imani E, Karimi Haji Khademi MA, Hosseini Tasnizi S, Shafizad A. The effect of self-care education program on self-efficacy and quality of life of patients with colorectal cancer undergoing chemotherapy. J Prevent Med. 2021;8(2):82-72.
Files | ||
Issue | Article in Press |
|
Section | Research Article(s) | |
Keywords | ||
Cancer Supportive and Palliative Care Validity Reliability |
Rights and permissions | |
![]() |
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License. |